Greetings from Cincinnati Children's Hospital

At our appt. this afternoon, the pediatrician said she’s never seen anything like this and sent us on to Cincinnati Children’s Hospital, which is where we are right now. She spoke to a neurologist that suggested we come to the ER here.

At lunch today, these movements affected Adam’s ability to hold his utensils. Rather than using his thumb, he’d squeeze it in against the rest of his fingers. He’s been unusually thirsty, has new movements, and has been really hyperactive. When talking to me this morning, he’d spin in circles. When walking, sometimes he’d quickly turn his head side to side. He fell asleep in the car on the way here, but his leg movements kept waking him up. He’d kick his legs, lift and tighten them, and push against the back of the driver’s seat. When he woke up, he was antsy to use the restroom. He leaned to the side, then front, etc. making quick circles.  The only time I’ve noticed the intensity increasing is when he has to go to the bathroom.

His mood is good. He doesn’t seem too upset by any of this, but is getting more frustrated. When he woke up, I asked how he was feeling, and he said, “Still…” while holding up his hands that were repetitively opening and closing.

Thank you all so much for the encouraging words. It means a lot sitting here knowing that people are praying and thinking of this sweet little guy. We appreciate it so much.