His white blood cell count is in normal range now. They took him off the oxygen while suctioning his nose and left it off since they were going to use new tubing. He was doing well enough that they didn't put him back on oxygen. The problem is that when he fell asleep his oxygen level got too low again & the alarm on his monitor went off. Changing his positioning helped, but he can't go home until that stops happening.
We just made an appt. with an ENT who is nationally recognized for her work with children who have Down syndrome (and just happens to have an office less than 2 hours from our house, and is covered by our insurance!!). I am so thankful!!
3 comments :
How wonderful! Let us know if/when you schedule surgery.
Thanks, Amy. We will probably have to schedule a sleep study before making any big decisions. Some kiddos sleep with a CPAP machine and don't need surgery. Pray for a good, alarm-fee night!
Praying for an alarm free night, is there anything I can do to help?
Sharon
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